Friday, May 30, 2008

Bill would let pharmacies sell medical records


"Bill would let pharmacies sell medical records"

The California legistlature has a bill before it, authored Democratic Party State Senator Ron Calderon, which would let pharmacies sell their patient records to Drug Marketing companies so that they can market their drugs directly to people.

It's difficult to think of a more blatant violation of privacy rights. The whole point of patient privacy is that the only the patient, physician and pharmacist have the right to know what medications are prescribed. In many cases, even the patient's family don't know the medications that the patient is taking, for a host of good reasons.

Imagine if a marketing company had possession of this information and started calling the patient's house, or sending mail to the patients house. It's easy to see how easily the patients privacy could be violated.

And even if you weren't worried about that. People often feel very sensitive about their medications and they don't want to receive marketing messages about their medications. I can easily see how getting bombarded with marketng messages about their meds could cause some patients to stop taking them.

What's amazing to me is the double speak being used to defend this proposed legislation. A spokesman for the State Senator Calderon said, "The point is to tell people to take the drug as prescribed and to refill it."

Yeah, Right. Not that I can't imagine a company engaging in public service like that. But there's a fundamental marketing concept called "adjacent markets" which is to say you start with one market and send marketing messages for similar products or services to that market. For example, suppose a patient is taking a prescription acid reducer medicine. Why not market over the counter medicines to that patient as well. And on the assumption that stomach acid is highly correlated with stress, why not market stress relief programs to that person. The point is, even if the do as intended, which is to remind people to take their medicines and prescribed, who can believe they won't do additional marketing to them?

The other tactic Senator Calderon is using to try to sell this legislation is that it has an "opt out" provision. At the time that patient picks up the prescription, he or she would be gien a form to sign in order to opt out of sharing their information. That's so wrong.

As we've seen with those gazillions of HIPAA notices, people HATE having to sign those forms every time they pick up a prescription. Most people have no idea what they are signing when they sign those forms. So adding a second one would be just as bad and make an already complicated process even thatmuch more complicated.

It's incredibly hard to understand how Senator Calderon can square his responsibility to his constituents with this bill. Nothing says special interest group like this bill.

And what makes me doubly mad is that the legislators are starting to adopt the terminology of privacy protection and twisting it around to serve their privacy invading purposes.







Thursday, May 29, 2008

Pictures Only A Scientist Could Love and Prospecting

I've been spending a ridiculous amount of time at the Phoenix Mars Mission site. The engineering involved in this mission is just staggering and for it to have been so relatively error free up to this point is almost unthinkable, especially considering how much software is involved.

But all that planning and building and testing and travelling the hundreds of thousands of miles to give us pictures like this:


It's dead, Jim. Can't we at least get a faux-face print in the sand or suspiciously stacked rocks? I don't need little green men. But please, let's get a little bit of mystery.

I know. I know. They are going to dig for signs of water and potential building blocks of life to see if maybe once there might could have been primitive life on the planet. And yes that will be very cool to find out. For the record. Here's my prediction. The planet is dead. Always has been. Always will be. I predict they will find not even the faintest hint of a possibility of life there.

When I was at Balticon I sat in on an presentation on the current state of AI in computers and an overview of the different approaches to AI systems. Along the way the presenter talked about some decision that were made about how much AI to put into the phoenix mission and how much autonomy to give the lander. The trade offs are that if you give the lander more autonomy it can react to threats more immediately because it takes multiple minutes for it to phone home information and wait for instructions. On the other hand, no one quite trusts AI systems to make the right decisions. In the end, the scientists and engineers opted out of giving the lander. The idea being that buy putting it under direct control of the earthbound crew they would likely be able to get some data out of it no matter how badly things went wrong. The speaker at this panel said that they'd rather have a sure chance at getting 10% of the data they were hoping for than run the risk of getting nothing because something went horribly wrong.

In my amateur study of risk management for my job in IBM, I've had the chance to read up on prospect theory, which is the study of the idea that human beings do not respond to all risks the same way and in particular that people do not want to put at risk what they already have or think they can have, but they will have higher risk tolerances when they think they can minimize losses. It seems to me that the decision to not give the Phoenix lander autonomy is consistent with this principle, which in some way, is more interesting than any of the pictures I've seen so far.

Baby For Sale On Craig's List

"Baby put up for sale on Craigslist"

"VANCOUVER, British Columbia (Reuters) - A couple has been arrested in what Canadian police said on Tuesday was an apparent offer to sell a seven-day-old baby girl on Craigslist for C$10,000 (5,000 pounds).

. . . . .

Vancouver police said the couple told investigators the offer was a hoax, but were arrested for public mischief with other criminal charges possible as the investigation continues.

'There are so many questions here,' Constable Tim Fanning told reporters."


Yes. Many questions indeed.

The story notes that a woman saw the ad and repored it to the police. So yay for self-policing. I wonder how many people read that ad and didn't do anything about it?

The newspaper article says that the ad mentioned that the baby was an accident and that the couple could not afford to care for it properly and wanted to give the baby a good home. When confronted by police, the couple said it was a hoax.

Granted it's wrong. But how and why is it wrong? Women who go through the "normal" channels for putting a baby up for adoption often set up legal agreements with the adopters in which the adopters compensate the mother for medical expenses as well as compensation for time and inconvenience. So that sounds an awful like "work for hire" to me. So I don't think you can say selling babies on Craigslist is wrong simply because they were asking for money. What if someone had answered the ad and they'd come to an agreement in principal about "the deal" and _then_ gone to all the proper authorities for making the adoption happen legally. Would that have been so bad?

My reaction to this scenario is that it would still be very unseemly, but at least that the baby's interests would have been properly represented. And I think that reveals the real nub of the evil in the craigslist baby ad. Sure the couple's ad said that they wanted to "give the baby a good home." But I think the couple's intentions were given away by the fact that the ad said the baby was "for sale" instead of "up for adoption." That kind of says it all. Would they have given up the baby to the first person who showed up at the door step with the cash? The very nature of craigslist would lead you to think so. I know that when I've sold stuff on Craigslist my policy is strictly, "first person on my doorstep with the cash gets it." I think that's why the idea of selling one's baby on Craigs list is so deeply viscerally wrong. it's not the money so much as it is the complete disregard for the baby's well being and safety.

Sunday, May 25, 2008

Two Minutes of Frogs

Been attending Balticon this weekend and listening to various panels and work shops on podcasting etc. So I had recording on the brain. When I got back to my hotel room last night, I couldn't help noticing the frogs outside the hotel and had to get a sample.

Monday, May 19, 2008

No iPod For Old Men

There's a reason that all those iPod commercials feature oung kids in musical bliss rather than older people. Turns out that older folks, especially men I think, have a problem with ipods. When the earbuds are inserted into the ears of older men, it tickles the hair growing out of their ears such that it's annoying to listen to the iPod for any length of time.

Not that I would have any personal experience with this phenomena. Oh no. Of course not. No way.

Wednesday, May 14, 2008

19 Year Old College Freshman Wins Mayoral Race

The Associated Press is reporting a story titled "U. of Okla. freshman, 19, elected mayor of Muskogee"

There's a couple of things that impress me about this story. First of all, Muskogee is a town of 38,000 people. It's a small town, sure, but big enough to have to run a serious campaign in order to win.

The next thing that impresses me, and amuses me, is this quote from Mayor-elect John Tyler Hammons:
"The public placing their trust in me is the greatest, humbling and most awesome experience I've ever had in my life," said Hammons, who is from Muskogee but attends the university in Norman.
I gotta like a politician that uses "most awsome" in a speech. That kinda says it all.

But the thing that impressed me the most was Mr. Hammons platform, from the AP Article:

The mayor leads the nine-member city council and serves as a voting member. Hammons said a key to his platform that resonated with voters was openness of government and keeping citizens better informed of city operations.

"I think that's been a detriment to the trust of the citizens of Muskogee," he said. "Once we have that trust, we can solve any other problem."

Truer words were never spoken.

Thursday, May 8, 2008

Mobile Bill Boards

I am not one of those folks who objects to bill boards on the interstate and highways. I don't believe the world owes me a pristine, view of the unspoilt country side. I'd _like_ there to be no bill boards. But I wouldn't go on a campaign to have them eliminated either.

But when it comes to mobile billboards, like the one you see below, I go ballistic and my blood boils.

IMG_3409

Bill boards on the side of the highway, might be ugly. They might even be distracting. But they don't contribute to traffic mess the way mobile bilboards do! That's where I draw the line.

I took some solace in this particular instance because the company that had hired the mobile bill board to clog the streets of Chapel Hill was in fact, going out of business.

IMG_3408

Wednesday, May 7, 2008

How Do You Say "Fido" in Spanish?

So there's been much buzz of late that Raul Castro has "allowed" Cubans to buy and own personal computers.

I'll refrain from stating the obvious. It's a sick and twisted society when one man can dictate what things the citizens are and aren't allowed to do/buy/be.

The interesting part about the story to me is that Raul still hasn't seen fit to allow the citizens of Cuba to hook their computers to the internet.

This reminds me of the pre-internet days of personal computers. For years, I ran a node on the FidoNet BBS systems. This was a message passing network, kind of like Internet news groups but the machines in the FidoNet dialed up each other and exchange messages. It was slow, but it worked.

I wonder how long it will take Cubans to discover the joys of FidoNet and I wonder how long it will be before ol' Raul will realize he's let the genie out of the bottle.

Saturday, May 3, 2008

Visiting the parental units in Cahrlotte this weekend.

Friday, May 2, 2008

My first message posted through ping.fm. Wooo!